Fighting Maternal and Infant Mortality in India Through Community SMS Text Reporting

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The state of Assam leads the country with the highest maternal mortality ratio (MMR), and one of the highest infant mortality ratios (IMR) in India. These health indicators persist despite the right to safe motherhood protected by the Indian Constitution and guaranteed under national laws and policies. The lack of data on the Adivasi community makes it particularly difficult to address some of the gaps in the implementation of maternal and infant health policies.

For this reason, Nazdeek, PAJHRA and ICAAD have developed the Project “End Maternal Mortality Now” (End MM Now). Launched in April 2014, the Project trained a group of 40 women volunteers living in Balipara and Dhekiajuli Blocks in the Sonitpur District of Assam to identify and report cases of health violations in their communities through SMS. The project has been implemented with the generous support of ISIF Asia.

A major outcome is the report, No Time to Lose: Fighting Maternal and Infant Mortality through Community Reporting. The report brings to light the obstacles that Adivasi women face in obtaining maternal health care in Assam – a state with the highest maternal mortality rate in India.

No Time to Lose is the first attempt in India to collect and map cases of maternal and infant health violations reported by women living in tea gardens through SMS technology. Based on nearly 70 cases reported by community members who participated in the Project, the report offers tangible recommendations for Block and District level health authorities and tea garden management to improve service delivery and save mothers’ and infants’ lives.

“For the first time, civil society in Assam can rely on solid data on the lack of access to maternal health services. Thanks to this data, we have formulated key recommendations to curb the appalling number of maternal deaths among Adivasi women.” – says Barnabas Kindo, from Pajhra.

No Time to Lose identified a significant gap between patients and healthcare providers. Key recommendations include the immediate appointment of a hematologist for the Dhekiajuli Community Health Centre, and the establishment of a more efficient referral system.

“End MM Now has proven to be an invaluable platform for women to monitor and claim access to basic rights and entitlements. Community members have already noted initial positive changes in the delivery of health services”, says Francesca Feruglio, from Nazdeek.

“Shaped by the idea of crowdsourcing, End MM Now maps and visualizes ground-level data, which is verified and made available to the public and the government. This way, the platform bridges an existing information gap and increases transparency in the delivery of health services,” says Jaspreet K. Singh, from ICAAD.

How Mobile Reporting is Reducing Maternal Mortality in India

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Women in the Indian state of Assam are routinely denied access to adequate health services and Assam’s health facilities often lack the resources necessary to ensure safe motherhood. As a result, Assam has the highest maternal mortality rate in India, with most of the deaths occurring among Adivasi (tribal) communities who live and work in the tea gardens.

These violations of the rights to health, life and equality are neither reported nor addressed. Basic tools to communicate, inform, and document violations are virtually non-existent, and women lack access to mechanisms to hold public and private entities accountable for the failure to provide life-saving treatment as required by law.

The End Maternal Mortality Now project launched an interactive website built on Ushahidi, to map failures in the health system in the State of Assam. Over 40 women in the District of Sonitpur have been trained to report violations of health and food benefits provided under the Government welfare schemes through codified SMS texts, which are then mapped to detect patterns of violations. The project is supported in its pilot phase by the Information Society Innovation Fund.

Jaspreet Singh from the International Center for Advocates Against Discrimination (ICAAD), an organization that combats structural discrimination, says:

“The SMS system allows for the tracking of multiple health rights violations, including the lack of resources at health centers. It is also acting as a community empowerment tool by engaging local women to collect data that will be used to hold the government accountable.”

The data received is gathered on endmmnow.org, which maps patterns of violations as well as individual cases across the District. The nine-month pilot project will be used to demand better health infrastructure by local activists and lawyers through administrative complaints and court litigation so that tea garden women workers be treated with dignity and have guaranteed access to lifesaving healthcare.